Dementia carers found to have been give no information on key support issues
- 17 Sep
Findings in a study from the University of York and Firefly Research and Evaluation commissioned by the Carers Trust found that more than half of all carers of people with dementia have not had sufficient information regarding medicines management, incontinence or legal issues.
It was also revealed that 52% of carers had faced difficulties obtaining a diagnosis for the person for whom they cared, and only 51% had been given the chance to talk separately about how much care they felt able to provide, reports Community Care. In addition to this, 68% of the 325 carers questioned had not had training or advice on dealing with the agitated behaviours that develop in the later stages of the illness.
One carer said a specialist dementia nurse had not visited him until 18 months after his mother came to live with him, and only then was he invited to attend a carer's course.
"I could have done with the information a lot sooner because prior to this I hadn't appreciated that much of Mum's contrary and difficult behaviour was due to dementia. Once I understood that I could to some degree make sense of it and cope with most of it."
Chief executive of the Carers Trust said it was clear that all professionals needed a checklist of all the information and advice carers needed both in the immediate and long term future.
The report highlighted seven critical points when carers most felt in need of information and support. Included in this was when dementia was first diagnosed, when the person loses their mobility, when they begin exhibiting behavioural problems and when they become incontinent.
Image source: http://www.sxc.hu/photo/1146858
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How to Fund Housing Support and Social Care Services Good clear delivery of some complicated information. Jaqui Smith - Young Womens Housing Project