Jack Davis, aged 14, was bullied through primary school and now wants to help improve the lives of other people who have Tourette’s Syndrome.
After being diagnosed with Tourette’s Syndrome at seven years old, he started to get tics when he was 8, and now suffers with head movements and a facial tic.
Jack also suffers with Asperger Syndrome, which is agrevated by the tics, as they cause him anxiety and stress, but he controls this himself.
With support from his family and teachers, he has worked for a year to set up a Tourettes Awareness charity, to help improve the lives of adults and children with Tourette’s Syndrome.
Jack has created the Tourettes Awareness support charity to make life better for people with Tourettes Syndrome and to offer information and advice to sufferers and their families who have little or no understanding of Tourette’s Syndrome. There will also be support sessions for groups of parents/carers and sufferers and fundraising events like family days out, sponsored fun runs, walks and abseils for the charity.
The website offers information and support, promotes research into better treatments and helps to fight ignorance, misunderstanding and prejudice.
He has created and published the official website and hopes raise a non-profit fund of £5,000 in 12 months to become a regional registered charity.
The bullies used to call me ‘twitch boy’, ‘the twitcher’ and ‘the twitchinator’. It made me feel worthless; it destroyed my self esteem and mind set.
People have no idea at all what it’s like to live with it. You don’t feel like you have a place in the community, I was like an outcast. The fact people can’t understand how it is affecting me is ignorant, they think it’s something to laugh at.
It’s a life affecting and life changing condition.
I have overcome the bullies and the low self esteem and have dedicated the last 12 months to setting up my charity.
Source: Plymouth Herald